Publication

2019 - The MIT Press, Massachusetts

Language

English

Word Count

54,750 words, Guess

Page Count

219 pages

Identifiers

and 2 more
  • Better World Books9780262039567
  • Open LibraryOL27329615M

Classifications

  • DDC660.6
  • LCCTP248.2 .E83 2019
  • LCCTP248.2.E83 2019

Description

From next-generation prenatal tests, to virtual children, to the genome-editing tool CRISPR-Cas9, new biotechnologies grant us unprecedented power to predict and shape future people. That power implies a question about belonging: which people, which variations, will we welcome? How will we square new biotech advances with the real but fragile gains for people with disabilitiesespecially when their voices are all but absent from the conversation? 0This book explores that conversation, the troubled territory where biotechnology and disability meet. In it, George Estreichan award-winning poet and memoirist, and the father of a young woman with Down syndromedelves into popular representations of cutting-edge biotech: websites advertising next-generation prenatal tests, feature articles on ́three-parent IVF,́ a scientist's memoir of constructing a semisynthetic cell, and more. As Estreich shows, each new application of biotechnology is accompanied by a persuasive story, one that minimizes downsides and promises enormous benefits. In this story, people with disabilities are both invisible and essential: a key promise of new technologies is that disability will be repaired or prevented. 0In chapters that blend personal narrative and scholarship, Estreich restores disability to our narratives of technology. He also considers broader themes: the place of people with disabilities in a world built for the able; the echoes of eugenic history in the genomic present; and the equation of intellect and human value. Examining the stories we tell ourselves, the fables already creating our futures, Estreich argues that, given biotech that can select and shape who we are, we need to imagine, as broadly as possible, what it means to belong.

Subjects

Other Editions

  • Fables and futures: biotechnology, disability, and the stories we tell ourselvesThe MIT Press2019-01-01

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